Jul 24 2021

Images tagged "reunion-2012"

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  1. judy says:

    Really nice web site!!! Thanks much. Judy Eades

  2. karen dulany says:

    This new website is just AWESOME.
    THANKS TO THE PEOPLE WHO PUT IT ALL TOGETHER.

  3. GG & Paul Genereau says:

    It’s a great site! We especially appreciate all it includes since we couldn’t attend at the last moment this year! We felt as if our second family had been ripped from us as we made the unexpected medical trip to see a doctor out East!

  4. Sheri says:

    Love the new website! Great job Wilma and son!!!!

  5. admin says:

    Annie I enjoy your page.

  6. admin says:

    Annie what a wonderful article about our supporter’s. Fred helped me so much and as you said trying to keep me from doing to much. My kids are such good supporter’s too and I really appreciate them.

  7. Jan Purk says:

    Annie, Sunday, June 17, 2012

    It would be difficult for me to write about a few fun experiences while at the reunion last week. The whole experience was great. I enjoyed meeting all 4 new members that attended, plus some who were not new but weren’t there last year, my first time attending the reunion. Seeing all the people I had met last year was great, too. I’ve never had a family reunion where I felt like I did when I was there. After 62 years, I’ve finally found my real family. I always did tell my mom I was adopted. lol

    I can’t remember the last time I laughed so hard that tears were running….but I sure did last week. We enjoyed sitting outside late at night and talking with some of the other night owls. We took advantage of the pool and hot tub. Wish I had both at home. lol, we did not leave the motel grounds from Thurs. afternoon until Sun. morning when we left and didn’t mind one bit.

    Hugs,

    Jan

  8. Janet says:

    What a wonderful job you ladies did!!! So happy to have met you, I hope I can get there again.. Love this site!!
    Hugs Janet

    • admin says:

      Thanks Janet so glad you like it, we love doing it too. I hope you will get to read some of the Memoirs, they sure do tell the story of how much fun we have.

  9. Mike says:

    I enjoyed the article. It really is tougher for the spouse. I had non-paralytic polio. I was athletic, operated summer camps for children in the summer, and I worked, and am still working. When PPS got to me about 20 years ago, it put me into an AFO. I could still function quite well. But in 3 years that AFO became a full leg brace, and slowed me down. In NY there is no support group for spouses of polio survivors. We’re married 44 years. For 27 years she couldn’t slow me down, and then things changed. It was really difficult for her to deal with it in the beginning. It took several years for her to deal with me in a full leg brace, and then accept it. I now have an AFO on the “good leg,” which I know in time will become a full leg brace. I don’t bring my wife to the support groups or conferences where I speak, because I don’t want her to see the many survivors who are much worse than I am, and listen to the stories. I’m dealing with this fine. I wanted to write a book: “From Tennis Court to Legbraces.” One thing PPS has tasught me: “You cant get upset over something you have no control over.” Live with it, or be miserable. Life is great. Mike

    • Annie says:

      Thanks, Mike!

      I do hope that she is able to make peace with this, for her sake and for yours. I encourage you to go ahead and write the book; I’m sure it will be fantastic! And you are quite right; We as survivors have spent our lives leaning to “Live with it”. And yes, life IS great!

  10. Janet Williams says:

    Annie- I love what you wrote. It was hard for my Husband to understand what was happening to his ‘wife’- I was his care giver but looking back- he was my caregiver, also. Strange.. As sick as Vern was he would still try and vaccuum always asking me, what he could do for me. He did not like the treatment I got from some of the doctors around here, when I was not quite sure what was really going on. So when he got his 100% VA- he sent me to The Post Polio Institute- and he tried so hard over the next few years to understand- he would tell me to stop- lay down, rest – take day by day. He read a few things about PPS- and was so worried about me. He made sure I got my PC(power chair) and would tell me to use it more as I was having a war with the chair. Vern kept me mentally going as I had a break down in ’05 physically and mentally. He kept me going though and together we would try and make ‘humor’ out of both of us being disabled.

    Once my regular doctor asked me, what are you going to do when Vern’s needs get to be more and more- My answer- I will do what I have to do and hire people- No way would I have stopped caring for him. It was great he had the VA or should I say we had the VA to help. Together we all could work it together. He used to watch me and really could see my physical strength failing. He had alot of work down on our home- this is where I need to be right now- he made it so much more handicap accessible for both of us. I miss him so- his humor alone could take my depression and make light out of matters. I best stop before I write a book- but just wanted to express, how my husband care and tried to understand better than anyoody in my family.
    Hugs – Great Page.

    • Annie says:

      Janet,
      Thanks for your kind words.
      You were so very blessed to have Vern; even in his illness he did his utmost to look out for your needs, just as you did his. Very blessed indeed..

  11. Grady Equality Duke says:

    Thanks for your comments on fatigue. I have a partner for over 30 yrs. I don’t think he understands fatigue & I have explained it to him more than a few times. However, he has never thought of me as lazy. Like you, I never thought of myself as disabled while growing up & did everything my peers did, only slower due to my weak leg. Then Postpolio hit me in my fifties: now I have my good leg amputated and left me with the weakest one. I am now at 62 yrs. old in a wheelchair. A new thing for me to adjust to. I will adjust & I have accepted the wheelchair as part of me; as I did the cane, and braces earlier in my life. Post Polio never stops. We have to continually adjust & accept ourselves as we are changing throughout our life. I hope you continue to write & keep this page up. It is very encouraging to us all that suffer daily from Post Polio.

    • Annie says:

      Thanks so much, Grady, for commenting,
      Your determination to adjust, despite all you have been through, says so much about you as a Survivor!

  12. admin says:

    Annie I really enjoyed reading about when you had polio. You are a great writer……….it really kept my interest. Great article.

  13. Linda Donaldson says:

    Annie,

    Thank you for sharing your remembrances of polio. I remember the toast in the morning, with real butter on it! And I remember the cloverleaf steel tubs. They put a white cotton covering on our bottoms, nothing on top. It looked and felt like a diaper and I was 6! But I’ve alwyays loved being in the water so I looked forward to these trips to PT. I once lost my bottom cover while in that tub with two other children; I was so embarrassed! You mentioned being the only child in your neighborhood with polio; I was the first, and I’m still looking for the little newspaper clipping that Mom saved. The hospital was full of us. I was in isolation in a crib, I’m guessing due to the shortage of beds. I can still remember the glass with what seemed like wire on the inside. My Mom brought me a little kit with play lipstick which I dropped on the floor. I climbed out of that crib to get it and the nurse threatened me, saying that if I got out of bed again, she would cover the top of the bed so I couldn’t get out. Needless to say, I stayed in the bed after that. Oh, I got into trouble one more time. When I was transferred to the ward, there was a window at the top of my bed. I stood up to open the blind one morning and was told that if I did that again I woud be put in the doghouse. I could go on, but I’ll save it for another time. Thank you again, Annie!

    Linda in Ohio

    • Annie says:

      Thank you, Linda,

      As I look back, I know I was not the only child with polio; I have often wondered if the Editor of the paper gave specific instructions to the ones writing the article to say that to try to calm the hysteria of the epidemic that year.

      And yes, we had to wear the little diaper-like cotton pants too. I had forgotten that!

      Thank you for sharing your experiences!

  14. Janet says:

    Annie – I really loved reading about you growing up with Polio- It sounds like you had a very loving family. This means so much to young children. Now, I know where you got your strength from. Thanks for posting that and I look forward to reading more. I really give all of you that work so hard on this site, so much credit. Knowing how PPS can affect one and all. Keep writing and I will keep reading..LOL
    Hugs Janet

  15. Linda in Branson says:

    Annie,

    Great job. Enjoyed reading your experiences. Hoping the bad memories will stay hidden.

  16. Wilma says:

    Annie thanks sharing your trip with us. I caught myself right there with you seeing it all……….and it was beautiful. Wilma

  17. Howard T Browder says:

    I am a 61 year old male,I contracted polio in 1953 I was 2 yrs old.It left me partly paralized in my right side .with scoliosis of the spine.I had an AVM in 1995 that left me in wheel chair. I worked on public works for over 20 yrs.I now travel with my family.we are singing group call The Browders.

    • Annie says:

      Hi Howard!
      I believe I sent you an invitation to join the group but haven’t heard whether or not you did? If you didn’t get it and would like me to send another, please let us know? Thanks so much for writing – and Reading!

  18. Wilma says:

    Thanks so much for visiting our web site. Hope you like it and join our group, just go to the join page. We are a very loving group that meets in Branson, MO every June for an amazing time. We have people coming from all over the states to it. We would like to know more about your polio and let us tell you about ours. I was very impressed by looking at your web page. I was raised on gospel music. My son had a group from the time he was 14 and all the way through college and then he and his wife started pastoring a church. They now have pastored in CA for 27 years.

  19. Pat Grimes says:

    Annie, You are so very lucky that you were not hurt. Truly you were being watched over by God and his angels. Remember — CELL PHONE!!!!!!!!!!!!

  20. Annie says:

    I was, truly. Someone told me recently that when I get to heaven, my guardian angels are going to beat me up. But I am better about taking my cell phone with me now!

  21. Wilma says:

    Annie, thanks so much for this article. It is us to a “T”. I could see myself all the way through and when I got to the end I knew there was still hope for me to enjoy life. BransonGoers are a big part of that and I love you all. Wilma

  22. Annie says:

    Thanks, Wilma, The Bransongoers are absolutely a fantastic group. I don’t know what I’d do without them!

  23. Millie says:

    Great job, Annie. I especially enjoyed the article explaining what happened to us at the onset of polio and the consequences of all that later. You are such a good writer!

  24. Robeert Hukill says:

    Our 15th annual PPS BransonGoers Reunion was held June 7 – June 9, 2013
    Since we have not had reunion for 2013 shouldn’t it read ‘will be held’ not ‘was held’?

    • admin says:

      Hi Robert, thanks so much for seeing that……….I just wanted to know if anyone was paying attention!!! No you were the first one that caught it, glad you did, when I changed it to the 15th year I just failed to go a little further and changed the rest of it. Thanks for your keen eye. Hope you guys are doing good, see you in June.

  25. admin says:

    Annie I am still laughing…………you are such a good writer, it really keeps your attention. Thanks for sharing this.

  26. Millie Lill says:

    Thanks for this, Annie. Hilarious! Just proves what I’ve always said: Little boys never really grow up, they just get bigger and harder to control.

  27. Steve Brown says:

    My wife and I would like to attend the June Conference. How much would the check be in Canadian funds?

    • Annie says:

      Hi Steve,
      I sent an e-mail to you earlier today but thought I would post the answer to this on the website in case anyone else had the same question. As of today’s date and exchange rate, these are the fees: (bear in mind that they change all the time, but hopefully won’t change “much”.
      The Registration fee if sent before May 15th, 2013 is: US: $65.00 per person; CAN: $66.14
      The fee for coming “One Day Only” is: US: $30.00 CAN: $30.53
      The fee if you wait and pay at the door (provided the exchange rate is still the same): US $70.00 CAN $71.23

  28. Maxine Nelson says:

    We are attending the conference in June and have registered and sent a check. Wondered if we would get a packet of info, so that we can plan our days and when it might arrive. My beautiful daughters are accompanying me and we plan on have a great time.

  29. Stanley Johnson says:

    Wilma, I sent my registration in about a month ago so am looking forward to my first Branson reunion. Do you have a tenative agenda(rough)for this reunion. I have other friends in Branson I want to spend a little time with besides.

    Stanley

  30. Darrel & Patti Sudduth says:

    Wilma, we were at a post polio meeting this afternoon and some of the people going to Branson said they found the 2013 reunion schedule on the website. We’ve looked and the only schedule we find is for the shows (and we get an error message trying to open that). We’ve looked on every tab on the website including the “Reunion” tab. Would it be possible to email the schedule to us as an attachment? Or, tell us where to find it on the website. This is our first time going to Branson, so we’re not sure what happens and when. We sent our money in April and we know it was received because the check cleared our bank.

    Thanks a bunch.

    Darrel & Patti Sudduth
    email address: ds50206@windstream.net

  31. Wilma says:

    Darrel & Patti it is on our web page which is http://www.postpoliobransongoers.com on the home page are several tabs at the top, click on the reunion tab and it will show you the schedule. Hope this helps you. See you in a few days. Looking forward to meeting you both.

  32. admin says:

    Darrel & Patti I’m sorry I looked on our web page again and it has our agenda but not the schedule. On our yahoo page where we write back and forth to each other it was sent out to everyone and that’s what I was thinking about. I know our speakers and entertainment is on Saturday but right now I don’t have the letter about it to tell you the times. If you need the times before you get down there write back and I will get them for you.

  33. Wilma says:

    Annie I really enjoyed reading this post, you have a remarkable way of writing and it’s so easy to read………I was wanting more when it was finished.

  34. sharon szegedy says:

    I just discovered your website, I have had pps for around 15 years,had polio in 1946 at age 4. I was paralyzed from these waist down. I slowly came out of the paralysis and was left with weakness on my left side. My left leg and hip are small, during the 50’s I had three surgeries to stabilize both feet and a muscle transplant that didn’t work. Like many of you, I could write a book of the many memories some good, some sad. I have found all of your stories so very interesting and informative. Wish I could meet you all in Branson.

    • admin says:

      Sharon good to hear from you. My name is Wilma and We would love to see you in Branson too. Where are you from? I had polio when I was 2 years old and PPS doesn’t showing up around 1999. I am in a power chair full time now. We have a Branson web address if you would like to join our group. The address is http://www.PostPolioBransonGoers@yahoogroups.com There is a form to fill out to join.

    • Annie says:

      Oh, Sharon, we wish you could come to Branson too! Is it possible? Please write and let us know? There are so many stories to share among us all. Being a part of our group is a very ‘special place to be!’ I encourage you to join the PPBG group that Wilma has linked on the home page!
      As far as writing your stories goes? You should! Since many of the professional groups think of us as “dinosaurs”, our stories are rapidly diminishing. We need to be writing them down for our families’ benefit, if nothing else!

  35. Bill and Audrey Curnutt says:

    Greetings:

    Audrey and I just attended the PPS Branson reunion and felt so welcomed and loved by all whom attended. We can never tell you how welcomed you made us feel. To those who did not attend sure missed a blessing and lost out on some great information. There was some great food too. Don’t forget next year!!!

    If I start naming names, I know I would miss some ones so I won’t go there. You each one shared a very important part of you lives with us. I feel for sure I am not along in this PPS fight. You gave me insights that I had never had before. We each have a story to tell don’t we? We are looking forward to next year and wish it were next week.

    Thankfully we are still able to travel so last year we brought another small motorhome to do short trips in and camp in as we enjoy that so much. After being fulltimers for 10 years, we had to sell our big rig and brought a duplex in Marshfield MO so I could recoup and heal. That lasted less than two years then we moved into our current home in Springfield MO which is a 55 plus condo place by Cox hospital. Everything is so handy at this location. It is also handicap excessible.

    I was able to get an appointment with Dr. Kargus in Joplin for this coming Thursday. I am looking forward to that appointment with a man whom knows about PPS. I cancelled my appointment with my other doctor in St. Louis. I was not looking forward to that drive this time. Joplin is only about 1 1/2 hours away from us.

    I am trying to learn the “ins and outs” of all the PPS sights you all have so you will have to bare with me for a while please. Annie, thanks for your help in this as I need all the help I can get. Thank you

    Bill R. Curnutt

  36. Annie says:

    Thanks so much, Bill! I cannot express how much we all enjoyed meeting you and Audrey! We learned much from you, as well!

  37. shirley ledford says:

    Thanks for all the interesting stories. I was surprised to read that one member caught polio in 1946 when she was 4 years old. I caught in September 1946 at age 4. My sister came down with it about ten days later and died in April 13, 2001 after PPS and heart trouble took her. We spent about 2.5 years in Children’s Mercy Hospital, K.C., Mo. as we both came down with rheumatic fever at ages 6 and 8. Between the polio and rheumatic fever the hospital seemed like home to us for a time. My husband and I are both planning on attending this year and it sounds like a wonderful group with lots of stories and experiences I can relate to. Thanks Annie for your story, I enjoyed it and sympathized with so many of your experiences. To Bill in Springfield I think you will like Dr. Kargis, he is a wonderful human being and has ordered me a PC and is doing all he can to help me deal with PPS.
    Shirley

  38. Annie says:

    Thank you, Shirley,
    I too, was four when Polio struck. I’m so sorry to hear about you losing your sister.
    Yes, the PPBG group IS a wonderful group. We are very excited about the upcoming reunion, and about meeting you!
    ~Annie

  39. Linda DuPre says:

    Your join link does not seem to be working. I would like to know about your reunion in Branson schedule so I can decide when to come and for how long. I only live about 2 hours away from Branson so dont know if I will need a room if I only stay 1 day. Thanks, Linda

    • admin says:

      Linda thanks so wanting to join and I hope you will be able to come to Branson this year. It has been working because other people have joined so I don’t know why it isn’t working for you. When you click on join from our webpage it is suppose to take you to our Yahoo group so please try this directly and see if it works. Let me know so we can go a different route to get you joined. Wilma https://groups.yahoo.com/neo/groups/PostPolioBransonGoers/info

  40. Nympha Lapuz says:

    Greetings !
    I am a post polio victim from the Phiiippines . I am a teacher here, I would like to ask if I can join your group? Since it is yearend vacation here, can I join your seminars/party? How much is he cost ?Hope to hear from you. Thank you!

    Nympha Lapuz
    nymphalapuz@gmail.com

  41. Misty says:

    My dad has Post-Polio and we recently found out about your Reunion. We have our rooms reserved but didn’t know if we needed to register for the event and if so how. Would you please let me know? Thanks.

  42. Thomas Christian says:

    Ole better git a hearing ade?

  43. Jessi holbert says:

    Hi this is Jessi holbert mary holbert granddaughter I just wanted to let all of you wonderful Branson goers that mary holbert is home from the nursing home for good!!! She is doing wonderful!!! Thank you all for your support and prayers!

  44. admin says:

    Jesse thank you so much for letting us know about your grandmother Mary. We missed her so much this year at the reunion and so happy that she is finally back home. Wilma

  45. Millie Lill says:

    Ruth, read all you can online and I also suggest that you join one of the Facebook polio sites. You can learn a lot from those of us who have been there and done that.

  46. Hilary Boone says:

    Why do we still have so much hassle trying to get decent medical care. Sharing experiences really does help us realise ‘It’s not just me’ which slightly lessens the frustration and stress. Millie as usual you have done a great job.

  47. Ross Funkhouser says:

    Trying to get a message to Wilma. I hope this is the right Wilma. Received a phone message wanting the month of my birthday. My fingers worked faster than my brain and I accidentally deleted the message before making a note of the phone number. The month of my birthday is November. If you need more info let me know.